How might we meaningfully involve patients, the public and other stakeholders, in evidence synthesis? Though there are unique challenges in presenting the complexities of why evidence syntheses are relevant and important to the public and other key stakeholders, there are some great examples out there:
- INVOLVE guidance on public involvement in systematic reviews
- “No evidence synthesis about us without us” – paper by Walker et al on involving children and young people in a systematic review.
- A set of Open Access (free) resources related to engaging with stakeholders during the planning, conduct, and communication of evidence syntheses and a webinar from Neal Haddaway
- Cochrane Consumers resources and learning.
Other general PPI resources for clinical research are available on the Clinical Research PPI Working Group repository
We are co-developing our PPI Strategy with Derek Stewart, OBE – so watch this space. If you have involved patients or the public (or been involved yourself) in systematic review conduct or dissemination, we’d like to hear from you: esi [at] nuigalway.ie