Webinar: Prof. Shaun Treweek, Clarinda Cerejo & Ioanna Gkertso - Equity, diversity and inclusion in evidence synthesis: how the PRO EDI tool can help

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PRO EDI is an initiative led by Trial Forge, Evidence Synthesis Ireland and the Campbell Collaboration to try and make it easier for those doing systematic reviews, especially ones including randomised trials, to explicitly consider equity, diversity and inclusion in their reviews.  The initiative benefits from an international advisory group to help us make PRO EDI relevant to all reviews, wherever the reviewers may be based in the world, and whatever the topic of the review. In this webinar the development of the PRO EDI tool will be described and the tool itself introduced.

Speakers:

Prof. Shaun Treweek is a health services researcher interested in efficient trial design, particularly around inclusive recruitment and retention and the effective presentation of research evidence. He led the development of the NIHR INCLUDE Ethnicity Framework, a tool to help trialists design inclusive trials, PRO EDI, a tool to help systematic reviewers consider equity in their reviews, and PRECIS-2, a tool to match trial design decisions to what the users of the results need. He leads an initiative called Trial Forge (http://www.trialforge.org) that aims to be more systematic about how we identify, generate and use research evidence in making trial design, conduct, analysis and reporting decisions.  Finally, Shaun is an Editor-in-Chief of the journal Trials.

Clarinda Cerejo is a EUPATI-certified Patient Expert and a Stanford-certified Design Thinker. She serves as an India Ambassador for The Sumaira Foundation, a Board Member of the Global Patient Advocacy Coalition, and a Management Committee of the Rare Disease Research Network. She consults various organizations, including the World Health Organization, on patient/stakeholder outreach and engagement. As a Patient Contributor to the Pro-EDI project, Clarinda draws on her lived experience with a rare disease and various comorbidities, her professional background in science communication, and her geographic vantage point living in India to offer a well-rounded perspective. She cares deeply about patient engagement and co-hosts the podcast “Not Just Patients,” through which she aims to amplify the patient voice and break barriers to meaningful patient involvement in healthcare. LinkedIn: https://www.linkedin.com/in/clarinda-cerejo/

Ioanna Gkertso